Patient Resources

We are here to help make this process go as smoothly as possible.

Our team is educated, friendly and willing to help you and your son or daughter navigate non-operative scoliosis care.

To that end, we encourage you to learn more. Here are some helpful links:

 Support

Scolios-us: A web-based platform intended to empower scoliosis patients with the tools and resources they need to be successful brace-wearers.

Success Stories: Hear from patients of the National Scoliosis Center.

Girls: Talk to other girls with scoliosis, contact Curvy Girls and find a group near you!.

Boys: Contact either National Scoliosis Center (Fairfax or Baltimore)—we do have quite a few boys who have gone through or are going through treatment and we are happy to connect you.

 Information

Medline Plus: Helpful links with easy-to-read descriptions and definitions.

Scoliosis Research Society: Good source of basic information.

National Scoliosis Foundation: General information on scoliosis.

The Center for Young Women’s Health: Good resource for young girls.

Scolios-us: a web-based platform intended to empower scoliosis patients with the tools and resources they need to be successful brace-wearers.

Scoliosis Insights: Learn more about scoliosis from our experts and colleagues.

 Out-of-Town Patients

Our patients come from all over the United States, Canada and sometimes further. To ensure patients experience a smooth and enjoyable visit, we utilize special procedures to accommodate traveling families. These include: a condensed appointment schedule, assistance with lodging, and ongoing communication with your referring doctor back home.

Typically, our patients make two visits a year, each lasting 1-2 days in the office. Schedules vary, however, a typical out-of-town agenda follows:

Initial Visit

Day 1: At 8am, the patient is scanned to obtain custom measurements for their brace. Afterward, the patient and their family generally spend the day visiting the area including the National Mall, with world-class museums and historic monuments. Our Orthotists block off a significant portion of their day to design and fabricate the brace. The patient returns for a 2-hour appointment in the late afternoon for the brace delivery and fitting. This 2nd appointment may be moved to Day 2 if patient prefers a later start time.

Day 2: The next morning, the patient returns after wearing the brace for the remainder of Day 1 and overnight. They will also get an EOS in-brace X-ray at this time to determine in-brace spine correction. Based on these images and any areas of discomfort, adjustments are made by our Orthotists at this time. Afterward, the patient generally returns home.

6-Month Follow-Up Visit

Day 1: The patient comes in for an out-of-brace EOS x-ray and our Orthotists make changes to the brace based on growth, changes in curvature, or any areas of discomfort. This visit usually requires a 1-night stay, with the patient returning home after the appointment.

We generally need to repeat this 2-visit cycle every year until the child has reached skeletal maturity. However, if the patient’s Orthopedist does not recommend a new brace at the 1-year mark, the patient will only need to come in for a brace tune-up and any recommended adjustments based on the out-of-brace X-ray.

 Fashion Tips

Here are a few fashion tips to discreetly wear your brace:

Use Patterns – Patterns will busy the eye to make the lines of the brace less noticeable
Wear loose-fitting clothing – Loose fitting tops can conceal the piece
Layer clothing – Typically, this is done with wearing a form-fitting tank and a loose shirt or sweater over
Draw attention to other areas – Necklaces, cool shoes, or a shiny pair of earrings can draw the eye away from the torso
Longer hair – The most visible part of the brace is the top edge, rear view. Having longer hair can either completely hide or soften the edge.